http://lymecommunity.com/forums/ubbthreads.php RSS Feed for General Discussion Lyme Community Forums - UBB.threads(tm) http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6416#Post6416 You know how they say the last ten pounds are the hardest to lose? Wouldn't you agree it's the same with Bb? I'm pretty much at my wits end, so if anyone has some suggestions I'd appreciate it. And I hope it helps you too. I'm 28 this week. I've had Lyme for about 7.5 years, most likely got it in NC Dec of '04. Was not diagnosed until 2010. By this point I was crippled, in wrist braces, barely able to walk, with horrendous joint pain, muscle pain, fatigue, severe nuerological involvement involving major tremors, difficulty speaking, light sensitivity, dizziness, migraines, and instances of random words coming out of my mouth when trying to talk. I experienced intermittent muscle weakness, an episode of tachycardia that landed me in the ER with a heart rate of near 200. Of course many doctor visits were without help. After doing my research I landed in an LLMD in August 2010 and confirmed what I already knew with bloodwork. Treatment was as follows, quite successfully: 4 months doxycycline, could use my hands again. Total of about 6 months on Intramuscular Bicillan LA shots with complementing pulsed Tindazole. Saw the most improvement with this. Almost everything cleared up. Also used Levaquin for a couple months to treat Bart. Didn't notice much difference. Tried Arteminisin, ceftin (allergic to), herbal Lyme drops. Low dose Naltrexone, 4.0mg- started 3 months ago. All lingering problems cleared up completely. I may have had others but I can't quite remember. As far as vitamins go- krill, b complex, magnesium, NAC, coq10, Msm, curcumin complex, and 5k vitamin d. Anyhow, I have had 2 months of amazing energy, and pain free activity. But this month the joint pain in hands, knees, wrists, feet, hips, are rearing their ugly head on occasion, as are muscle pain, and a slight tremor. Doctor has me back on Doxy, but he strongly gave me the impression that he doesn't know what else to do and thought maybe to try Rife. Being that it is only 1.5 years into treatment with medicine, I'm not sure I'm ready to throw in the towel, plus I have two months left on an incredibly accommodating insurance plan. Any suggestions? Also, does anyone follow a certain post Lyme exercise plan? Now that I'm exercising, I keep hurting myself because Im so weak from all that inactivity. Haven't been able to use my hip because I overdid it big time with biking and now I can barely walk. Perhaps I need a more gentle approach. Thank you. Fri, 04 May 2012 06:58:55 CDT http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6413#Post6413 Reading Dr. Farbar's book "THE MICRO SILVER BULLET" sounds like he "CURED" him self of lymes.? Dr. Farber's book sounds pretty interesting. The more I read about C/Silver it seems to make sense. Colloidal Silver has a pretty long history on killing most all types of BACTERIA'S, VIRUS'S, FUNGUS'S, ETC. I've known about C/S for a long time now. But didn't take it to serious as a lyme killer until I read Dr.Farber's book. I'll post on any positive/negative results and no general health and more on lyme and C/Silver as I put it to the test, and find out more info. There's also "MOLECULA SILVER" which is much smaller molecularly .062nanos, which is more like the size of a gas molecule in size.. Interesting, is anyone trying C/Silver for treating lymes.?? I bought some Molecula Silver from (A2ZHeath Products) I'm trying it. Its NOT CHEAP! and I don't really know if its any better than Colloidal Silver, I make my own C/Silver with a "Silver Puppy" Colloidal silver generator, it makes a pretty good quality C/S. Fri, 20 Apr 2012 12:51:53 CDT http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6356#Post6356 Greetings, I am selling my Rife/Crane CES Mark V - Waveform Frequency Resonator combination kit containing many accessories. I originally purchased this in November 2008 from a wholesale company in New Zealand called Altered States. It includes the following: Canpulsar Magnetic Blanket Adapter Electric Blanket Magnacoil (Small) Earclips BT9 Headset Wrist Cuffs Serial Computer Cable (RS232) Copper Plates Zapper Electrodes The only accessories that were used were the Magnacoil and the Frequency Resonator. All others are still in the original packaging with zip ties still on them. If you want to know specifics about the above listed items, please do a search for this on Google or visit Altered-States website. This package sells today for over $1300CAD. Here is the eBay ad: http://www.ebay.ca/itm/251030249381?ssPageName=STRK:MESELX:IT&_trksid=p3984.m1555.l2649 If this is not allowed please let me know. Thu, 29 Mar 2012 16:12:31 CDT http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6355#Post6355 I've been scheduled to go out to the Columbia University Tick-Borne Disease Research Center 2nd opinion research center. Has anyone done this and have any stories they can offer me? http://www.columbia-lyme.org/ Sun, 11 Mar 2012 06:59:43 CDT http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6354#Post6354 Hi all, Thanks to everyone who has helped me on this forum so far. I’m currently living in London, UK and currently exploring ILADS, LLMDs in the US, particularly in NYC. I think i’ve narrowed my search down to 3 Drs in the area - sorry in advance for the array of mysterious initials! Dr R Dr S (practices at the M center) Dr M (who also practices at the same centre) As it’s quite an investment to fly over, get an appointment etc I’m looking to get as much info, and testimonials as possible so that I can make an informed decision. Does anyone have any experiences with these doctors (good or bad) that they can share? My own symptoms are mainly neurological / brain related spanning over ten years, progressively worsening. Feel free to PM me if need be. Thanks Adey Sat, 18 Feb 2012 22:42:21 CST http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6353#Post6353 Seeing a regular infectious disease doctor (an IDSA doctor) is a waste of time! They are not Lyme-literate. You need to see a real Lyme doctor, an ILADS certified one. You can get a free referral to one in your area at: http://www.ilads.org On another note, one of the founding members of the ignorant IDSA actually just wrote a book (which I published) denouncing the position of his organization and saying instead that chronic Lyme is real and should be treated. Get a copy of this book for your good for nothing infectious disease doctor! http://lymebook.com/burton-waisbren-chronic-lyme-book-essays Fri, 17 Feb 2012 12:18:33 CST http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6348#Post6348 I have been sick for several years, and am trying to find out if I have Lyme. It's slow going in Canada. I have major swelling through my entire body, including right up above my lip to my nose, and major abdominal swelling as well. I have disfiguring bone changes through my entire body. Does anybody else have this? Tue, 07 Feb 2012 11:27:54 CST http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6262#Post6262 I have had experience with TrueRife and feel that it has made the difference. One key approach is to identify the co-infections first then the Lyme frequencies are more effective. Also, herbs and antibacterial tinctures and stay away from sugar of all sorts. The bacteria craves sugar and amplifies the symptoms. My practitioner and I have been working on it for about 7 months, fighting Lyme is a long slow process, and if you are prone to allergies then it is even harder, but I am functioning and working day to day vs. being bed ridden. Thu, 19 Jan 2012 06:35:56 CST http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6261#Post6261 Hi; what treatments are you doing? Thu, 19 Jan 2012 05:09:15 CST http://lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=6259#Post6259 Arrow, I'm sorry to hear of his passing, thanks for sharing the links. Wed, 11 Jan 2012 06:29:46 CST